Comments on: How Not to Write a Health Story http://www.ourbodiesourblog.org/blog/2008/01/how-not-to-write-a-health-story Daily dose of women's health news and media analysis Wed, 08 Feb 2012 16:46:25 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Kate Hutchinson http://www.ourbodiesourblog.org/blog/2008/01/how-not-to-write-a-health-story/comment-page-1#comment-360 Kate Hutchinson Mon, 04 Feb 2008 17:39:57 +0000 http://ourbodies.s467.sureserver.com/?p=451#comment-360 Fibromyalgia is notoriously difficult to diagnose. My chronic pain was treated to physical therapy, yoga, diet changes, basic OTC pain relievers and a few MRIs to rule out slipped discs in my cervical spine. And then I was diagnosed with fibromyalgia. It was relief to have a name for my disease, and when Lyrica was first approved, I went straight to my doctor to try it. I've been on it since last July, and I can only say I feel much better. I sleep better, I can move more freely, and so forth. I'm sure it won't work for everyone, but I was terribly angry with the NYT article that dismissed it altogether. I would like to see the author could walk a day in my shoes and then tell me my pain isn't real. Fibromyalgia is notoriously difficult to diagnose. My chronic pain was treated to physical therapy, yoga, diet changes, basic OTC pain relievers and a few MRIs to rule out slipped discs in my cervical spine. And then I was diagnosed with fibromyalgia. It was relief to have a name for my disease, and when Lyrica was first approved, I went straight to my doctor to try it. I’ve been on it since last July, and I can only say I feel much better. I sleep better, I can move more freely, and so forth. I’m sure it won’t work for everyone, but I was terribly angry with the NYT article that dismissed it altogether. I would like to see the author could walk a day in my shoes and then tell me my pain isn’t real.

]]> By: gretchen http://www.ourbodiesourblog.org/blog/2008/01/how-not-to-write-a-health-story/comment-page-1#comment-359 gretchen Fri, 01 Feb 2008 16:33:37 +0000 http://ourbodies.s467.sureserver.com/?p=451#comment-359 i got sick last year from implants so i relate. my story is here www.myimplantstory.com and i have so many fibro and other symptoms that nobody can pin point. i got sick last year from implants so i relate. my story is here http://www.myimplantstory.com and i have so many fibro and other symptoms that nobody can pin point.

]]> By: Liz http://www.ourbodiesourblog.org/blog/2008/01/how-not-to-write-a-health-story/comment-page-1#comment-358 Liz Fri, 25 Jan 2008 20:55:52 +0000 http://ourbodies.s467.sureserver.com/?p=451#comment-358 It is unfortunate in our culture that depression, emotional and physical pain are not seen for what they really are. They are cries for help- not something that can be numbed or drugged away. One book I found particularly helpful is titled The Body Never Lies by Alice Miller. I have no doubt that these vague diseases could be a deeper emotional pain that has never been expressed and has never healed. Past and present emotional, physical and sexual abuse is a woman's issue because it happens to almost all women. When will it stop? When women stop passively numbing themselves and start demanding their lives back. It is unfortunate in our culture that depression, emotional and physical pain are not seen for what they really are. They are cries for help- not something that can be numbed or drugged away.
One book I found particularly helpful is titled The Body Never Lies by Alice Miller.
I have no doubt that these vague diseases could be a deeper emotional pain that has never been expressed and has never healed. Past and present emotional, physical and sexual abuse is a woman’s issue because it happens to almost all women.
When will it stop? When women stop passively numbing themselves and start demanding their lives back.

]]> By: Khurt http://www.ourbodiesourblog.org/blog/2008/01/how-not-to-write-a-health-story/comment-page-1#comment-357 Khurt Fri, 25 Jan 2008 19:25:24 +0000 http://ourbodies.s467.sureserver.com/?p=451#comment-357 I was trying to explain my wife's challenges with fibro to a friend and I know she was having a challenge with it. My wife also has restless leg, a sleeping disorder, and depression so she is on an interesting cocktail of drugs. Others wants to suggest food allergies (gluten allergies are quite popular now) and are stumped when I explain that my wife has undergone a battery of food allergy tests. And yes, she has tried yoga, and electro shock therapy and .... No. It's no in her head. She's in real pain right now. On another note: Hope you don't mind. I started a social network for fibromyalgia over on Ning. <a href="http://fibromyalgia.ning.com." rel="nofollow">http://fibromyalgia.ning.com.</a> Let me know what you think. I was trying to explain my wife’s challenges with fibro to a friend and I know she was having a challenge with it. My wife also has restless leg, a sleeping disorder, and depression so she is on an interesting cocktail of drugs.

Others wants to suggest food allergies (gluten allergies are quite popular now) and are stumped when I explain that my wife has undergone a battery of food allergy tests. And yes, she has tried yoga, and electro shock therapy and …. No. It’s no in her head. She’s in real pain right now.

On another note: Hope you don’t mind. I started a social network for fibromyalgia over on Ning. http://fibromyalgia.ning.com. Let me know what you think.

]]> By: Margie http://www.ourbodiesourblog.org/blog/2008/01/how-not-to-write-a-health-story/comment-page-1#comment-356 Margie Thu, 24 Jan 2008 23:09:47 +0000 http://ourbodies.s467.sureserver.com/?p=451#comment-356 I would be apprehensive of the medicine as a lot of new medicines have proved today. A friend of mine suffered from fibromyalgia, and she was tested for food allergies. It turned out after she completely changed her diet, she was much better. I would try gentle yoga and change of diet before medicine. I would be apprehensive of the medicine as a lot of new medicines have proved today. A friend of mine suffered from fibromyalgia, and she was tested for food allergies. It turned out after she completely changed her diet, she was much better. I would try gentle yoga and change of diet before medicine.

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