Comments on: The Treatment and Mistreatment of Chronic “Urgency and Frequency” http://www.ourbodiesourblog.org/blog/2009/06/ic-draft Daily dose of women's health news and media analysis Wed, 17 Mar 2010 06:39:44 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: kay zakariasen http://www.ourbodiesourblog.org/blog/2009/06/ic-draft/comment-page-1#comment-3022 kay zakariasen Sat, 12 Dec 2009 01:15:43 +0000 http://www.ourbodiesourblog.org/?p=6988#comment-3022 Dear Mrs. Spock, Thank you for posting a blog about my article on IC in the NWHN newsletter. Your story is very interesting. I am now interviewing patients and would like to talk to you if you are willing, to hear the whole story - multiple physicians, pain, how you were tested, etc. Your story may be helpful to others when we get the book I'm working on published. thank you very much, Kay Zakariasen Dear Mrs. Spock,
Thank you for posting a blog about my article on IC in the NWHN newsletter. Your story is very interesting. I am now interviewing patients and would like to talk to you if you are willing, to hear the whole story – multiple physicians, pain, how you were tested, etc. Your story may be helpful to others when we get the book I’m working on published.
thank you very much,
Kay Zakariasen

]]> By: mrs spock http://www.ourbodiesourblog.org/blog/2009/06/ic-draft/comment-page-1#comment-2465 mrs spock Sat, 20 Jun 2009 03:45:49 +0000 http://www.ourbodiesourblog.org/?p=6988#comment-2465 It took years and multiple physicians to figure out my excruciating bladder pain. One doctor even told me that, at age 24, "nothing serious happens to people your age, therefore this is nothing serious." All without an exam or testing. I was diagnosed tentatively with IC, but was told it was possible ( a 1% chance) I had a mycoplasma infection that would not grow in normal culture medium. There were only a couple labs in the country to send it to. Turns out, that's what I had. Doxycycline reduced my symptoms by 50%, and we tested again for sensitivity, and I was lucky enough to have a resistant strain. A month of azithromycin later, I am mostly symptom free. I so wish it didn't take 3 years to figure this out. It took years and multiple physicians to figure out my excruciating bladder pain. One doctor even told me that, at age 24, “nothing serious happens to people your age, therefore this is nothing serious.” All without an exam or testing.

I was diagnosed tentatively with IC, but was told it was possible ( a 1% chance) I had a mycoplasma infection that would not grow in normal culture medium. There were only a couple labs in the country to send it to. Turns out, that’s what I had. Doxycycline reduced my symptoms by 50%, and we tested again for sensitivity, and I was lucky enough to have a resistant strain. A month of azithromycin later, I am mostly symptom free. I so wish it didn’t take 3 years to figure this out.

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